The Muscular
Dystrophy Association (MDA) is an organization devoted to the research,
funding and development of new ways to combat Muscular Dystrophy, an
illness which affects the muscular and neuromuscular systems.
While devoting their time to research and study, members of the MDA
also, perhaps more importantly, provide support, care, relief and hope
to those who suffer from the disease, as well as their family, friends
and loved ones.
According to its online Mission statement, the Muscular Dystrophy
Association “is a voluntary health agency—a
dedicated partnership between scientists and concerned citizens aimed
at conquering neuromuscular diseases that affect more than a million
Americans. MDA combats neuromuscular diseases through programs of
worldwide research, comprehensive medical and community services, and
far-reaching professional and public health education.”
Now an international cause, the MDA has branches throughout the world,
and possesses local branches in almost every region. The bulk of the
association’s members are volunteers, happy to donate time,
energy and funds to the cause.
Mattie believed wholeheartedly in the MDA; he and his mother were
volunteers with the MDA’s Maryland chapter. As
Mattie’s fame grew, so did his devotion to the society, and
he proudly served as its International Goodwill Ambassador in 2002,
2003 and 2004. He also participated three times in the Jerry Lewis
Labor Day Telethon, the MDA’s most prominent fund raising
venture, and perhaps the largest and most well known telethon in the
world.
The US MDA continues to remember Mattie on its website, located at mdausa.org.
The site itself is a comprehensive listing on the MDA, including
information about the association as well as reference on the disease
itself, links to resources, and a strong support system rife with
stories of triumph, hope and courage.
To contact the MDA, you can peruse their site at the aforementioned
link, email them at mda@mdausa.org,
or write them at:
Muscular Dystrophy Association - USA
National Headquarters
3300 E. Sunrise Drive
Tucson, AZ 85718
(800) 572-1717
MATTIE
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